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Jesy Nelson documentary shows twins' SMA diagnosis

Published 3 July 2026

Former pop star Jesy Nelson has shared the raw, emotional moment she learned her twin daughters were diagnosed with a severe genetic condition, footage that forms the heart of a new documentary launching this month. The 35-year-old singer, formerly of the group Little Mix, posted a trailer on social media showing the instant a doctor, via a Zoom call, confirmed the twins' genetic test was positive for Spinal Muscular Atrophy (SMA). In the clip, Nelson is seen cradling one of her babies before burying her head in her hands and crying, saying, "I can't believe this is happening."

The documentary, "Jesy Nelson: Life Changing," will be available on Amazon Prime Video starting July 17. It follows Nelson's journey after her twins, Ocean and Story, were diagnosed with SMA Type 1, a rare muscle-wasting condition that she describes as "the most severe muscle disease a baby can have." The NHS states SMA is a genetic condition that causes progressive muscle weakness and can affect breathing, swallowing, and movement. Nelson has said the late diagnosis for her daughters, now 13 months old, means they have suffered permanent nerve damage and will never walk. They require breathing...

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