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Emma Heming Willis Launches FTD Research Fund

Published 16 March 2026

Emma Heming Willis announced the launch of a new charitable fund dedicated to advancing research and support for frontotemporal dementia during an event in New York on Thursday, March 12. The initiative, named the Emma Bruce Willis Fund for Dementia Research and Caregiver Support, was revealed as she accepted the Susan Newhouse Si Newhouse Award of Hope at the Association for Frontotemporal Degenerations Hope Rising Benefit.

Speaking on behalf of herself and her husband, actor Bruce Willis, Heming Willis described the fund's mission to raise awareness of the disease, finance promising scientific research and support caregivers who manage the daily challenges of the condition. "This journey has opened my eyes to the realities so many families face when a loved one is living with frontotemporal dementia," she said. "I believe deeply in the importance of supporting research while also showing up for the caregivers who carry so much every day."

She continued, "Through this fund, my hope is to help deepen understanding of FTD and ensure families facing it feel seen, supported, and less alone. Bruce has always led with generosity and heart, and I know he would be proud to see this...

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